Category: Uncategorized

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Gabbi

Today we had to say a final goodbye to one of best friends ever – our constant companion who loved us no matter what through thick and thin, through lots of moves, traveling North...

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The Grind of Healing

I need some sort of a mantra or perhaps a set of them.  Healing from a surgery is always difficult for me at this stage.  I’m past the initial couple of weeks, when to...

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The Grind of Healing

I need some sort of a mantra or perhaps a set of them.  Healing from a surgery is always difficult for me at this stage.  I’m past the initial couple of weeks, when to...

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Life after untethering – 6 days post op

Symptoms are changing around from day to day, which I expected but the surgical pain in still very much present.  I forget I can’t do simple things like pull up my underwear in the...

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Life after untethering – 6 days post op

Symptoms are changing around from day to day, which I expected but the surgical pain in still very much present.  I forget I can’t do simple things like pull up my underwear in the...

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Giving over, not giving up

I’ve come to a place of surrender.  I’ve always hated that religious term because it holds such difficult and negative connotations.  No one wants to “surrender”, wave the white flag, or not “get their...

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Giving over, not giving up

I’ve come to a place of surrender.  I’ve always hated that religious term because it holds such difficult and negative connotations.  No one wants to “surrender”, wave the white flag, or not “get their...

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A different day and more tests needed…

Repost from my husband: @Steven Phillips THE GOOD NEWS: Doctors down here think they may have isolated three specific possible conditions that may be the reason for Rachel’s problems. THE BAD NEWS: we are...

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A different day and more tests needed…

Repost from my husband: @Steven Phillips THE GOOD NEWS: Doctors down here think they may have isolated three specific possible conditions that may be the reason for Rachel’s problems. THE BAD NEWS: we are...

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1st Appt in Maryland with my geneticist

Today was overwhelming and I’m really tired & hurting. Looking back, I’m not sure exactly what I expected but the appt with the geneticist certainly was good. She is AWESOME & we definitely loved...