Category: Uncategorized

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I want to scream right now. I really do. But I can’t because my airways collapse. I can barely breathe because my genetic disorder airway collapse is causing me to slowly die, unless I...

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I want to scream right now. I really do. But I can’t because my airways collapse. I can barely breathe because my genetic disorder airway collapse is causing me to slowly die, unless I...

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Check this out, it’s what Steven Phillips and I have been talking about. Please keep your fingers crossed and prayers and energy coming our way. I see Dr. Paolo Macchiarini when he’s in VT...

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Check this out, it’s what Steven Phillips and I have been talking about. Please keep your fingers crossed and prayers and energy coming our way. I see Dr. Paolo Macchiarini when he’s in VT at the...

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Summer has finally arrived & I can’t complain since it’s the July 4th weekend & if it didn’t get here soon, we were gonna miss it! Having said that though, it’s giving me A...

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Summer has finally arrived & I can’t complain since it’s the July 4th weekend & if it didn’t get here soon, we were gonna miss it! Having said that though, it’s giving me A...

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Happy July 1! We’re almost to the biggest holiday of the summer, days are already getting shorter, the swamp maples will start turning by the end of the month, we’re more than halfway to...

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Happy July 1! We’re almost to the biggest holiday of the summer, days are already getting shorter, the swamp maples will start turning by the end of the month, we’re more than halfway to...

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Another drs appt then get to see my amazing Sis Jenni Demont!! Soooo excited to hang out with her. 🙂 Gonna be a low key, o2 filled afternoon.

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Another drs appt then get to see my amazing Sis Jenni Demont!! Soooo excited to hang out with her. 🙂 Gonna be a low key, o2 filled afternoon.