Monthly Archive: July 2011

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A Compelling Story

To Whom It May Concern, I have what I believe will be a story of interest to you and your public. A few weeks ago, international news media carried a story concerning the the...

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On the News

Paolo Macchiarini recommended that we get our story out to the media so that we can find a way to pay for the surgery.  Here’s the video from our first TV news story:

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Reality check through a fog

I’m on the official countdown now until I see Dan and Paolo. In a little less than 30 hours Steven and I will be sitting talking with them, finding out the particulars of the...

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College of Medicine: University of Vermont

Dr. M. and his trip to VT. I’ll see him Monday morning before his presentation at Noon. 🙂 Literally counting down now! Regenerative Medicine Expert to Discuss Airway Surgery Advances SHARE THIS ARTICLE 07-21-2011...

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‎”There is a crack in everything. That’s how the light gets in.” -L. Cohen, “Anthem.”

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‎”There is a crack in everything. That’s how the light gets in.” -L. Cohen, “Anthem.”

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Join us in blowing a couple friend’s minds! See “A Really Big Favor To Ask” post below and join in the fun. These doctors are out of the office right now. When they get...

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Important Message: by Steven Phillips on Wednesday, July 20, 2011 at 10:50pm Thank you so very much for those of you who have already said you will write the two doctors I told you...

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A Really Big Favor To Ask

I have a really big favor to ask of you and it’s something I think you’ll enjoy being a part of.For the past three years a couple of people have worked tirelessly on Rachel’s...

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I want to scream right now. I really do. But I can’t because my airways collapse. I can barely breathe because my genetic disorder airway collapse is causing me to slowly die, unless I...