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Today was overwhelming and I’m really tired & hurting. Looking back, I’m not sure exactly what I expected but the appt with the geneticist certainly was good. She is AWESOME & we definitely loved...

Today was overwhelming and I’m really tired & hurting. Looking back, I’m not sure exactly what I expected but the appt with the geneticist certainly was good. She is AWESOME & we definitely loved...

As 2010 comes to a close, and 2011 dawns, I find myself as I do every year contemplating resolutions that I’d like to make for this new year.  But this year, my resolutions are...

As 2010 comes to a close, and 2011 dawns, I find myself as I do every year contemplating resolutions that I’d like to make for this new year.  But this year, my resolutions are...

Normally, I’d probably post something like this on my private blog but my pain therapist has been encouraging me to share more of my journey with people – regardless of what that might look...

Normally, I’d probably post something like this on my private blog but my pain therapist has been encouraging me to share more of my journey with people – regardless of what that might look...

I’m not a huge one for using notes on FB, I prefer other sites for that type of thing but I said I’d expound a little on what they said in my last thoracic...

I said I’d expound a little on what they said in my last thoracic consultation that was a little disconcerting so, here it is… I knew about the “Thoracotomy” or at least thought I...

I sit alone in solitary confinement in a prison of constant pain. Family and friends look on in anguish and tears roll down our cheeks. They reach through the bars to touch my hand...

I walk in a room where friends abound but no faces turn to greet me. I’m not avoided but politely ignored almost as though I were invisible. Or they wished I were. It would...