Category: Uncategorized

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1st Appt in Maryland with my geneticist

Today was overwhelming and I’m really tired & hurting. Looking back, I’m not sure exactly what I expected but the appt with the geneticist certainly was good. She is AWESOME & we definitely loved...

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A Very Different Set of Resolutions

As 2010 comes to a close, and 2011 dawns, I find myself as I do every year contemplating resolutions that I’d like to make for this new year.  But this year, my resolutions are...

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A Very Different Set of Resolutions

As 2010 comes to a close, and 2011 dawns, I find myself as I do every year contemplating resolutions that I’d like to make for this new year.  But this year, my resolutions are...

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Normally, I’d probably post something like this on my private blog but my pain therapist has been encouraging me to share more of my journey with people – regardless of what that might look...

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Normally, I’d probably post something like this on my private blog but my pain therapist has been encouraging me to share more of my journey with people – regardless of what that might look...

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More surgery details

I’m not a huge one for using notes on FB, I prefer other sites for that type of thing but I said I’d expound a little on what they said in my last thoracic...

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More surgery details

I said I’d expound a little on what they said in my last thoracic consultation that was a little disconcerting so, here it is… I knew about the “Thoracotomy” or at least thought I...

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Invisibility

I walk in a room where friends abound but no faces turn to greet me. I’m not avoided but politely ignored almost as though I were invisible. Or they wished I were. It would...

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I sit alone in solitary confinement in a prison of constant pain. Family and friends look on in anguish and tears roll down our cheeks. They reach through the bars to touch my hand...

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Invisibility

I walk in a room where friends abound but no faces turn to greet me. I’m not avoided but politely ignored almost as though I were invisible. Or they wished I were. It would...