Symptoms are changing around from day to day, which I expected but the surgical pain in still very much present.  I forget I can’t do simple things like pull up my underwear in the...

Symptoms are changing around from day to day, which I expected but the surgical pain in still very much present.  I forget I can’t do simple things like pull up my underwear in the...

I’ve come to a place of surrender.  I’ve always hated that religious term because it holds such difficult and negative connotations.  No one wants to “surrender”, wave the white flag, or not “get their...

I’ve come to a place of surrender.  I’ve always hated that religious term because it holds such difficult and negative connotations.  No one wants to “surrender”, wave the white flag, or not “get their...

Repost from my husband: @Steven Phillips THE GOOD NEWS: Doctors down here think they may have isolated three specific possible conditions that may be the reason for Rachel’s problems. THE BAD NEWS: we are...

Repost from my husband: @Steven Phillips THE GOOD NEWS: Doctors down here think they may have isolated three specific possible conditions that may be the reason for Rachel’s problems. THE BAD NEWS: we are...

Today was overwhelming and I’m really tired & hurting. Looking back, I’m not sure exactly what I expected but the appt with the geneticist certainly was good. She is AWESOME & we definitely loved...

Today was overwhelming and I’m really tired & hurting. Looking back, I’m not sure exactly what I expected but the appt with the geneticist certainly was good. She is AWESOME & we definitely loved...

As 2010 comes to a close, and 2011 dawns, I find myself as I do every year contemplating resolutions that I’d like to make for this new year.  But this year, my resolutions are...

As 2010 comes to a close, and 2011 dawns, I find myself as I do every year contemplating resolutions that I’d like to make for this new year.  But this year, my resolutions are...