Author: Rae

A different day and more tests needed…

Repost from my husband: @Steven Phillips THE GOOD NEWS: Doctors down here think they may have isolated three specific possible conditions that may be the reason for Rachel’s problems. THE BAD NEWS: we are...

A different day and more tests needed…

Repost from my husband: @Steven Phillips THE GOOD NEWS: Doctors down here think they may have isolated three specific possible conditions that may be the reason for Rachel’s problems. THE BAD NEWS: we are...

1st Appt in Maryland with my geneticist

Today was overwhelming and I’m really tired & hurting. Looking back, I’m not sure exactly what I expected but the appt with the geneticist certainly was good. She is AWESOME & we definitely loved...

1st Appt in Maryland with my geneticist

Today was overwhelming and I’m really tired & hurting. Looking back, I’m not sure exactly what I expected but the appt with the geneticist certainly was good. She is AWESOME & we definitely loved...

A Very Different Set of Resolutions

As 2010 comes to a close, and 2011 dawns, I find myself as I do every year contemplating resolutions that I’d like to make for this new year.  But this year, my resolutions are...

A Very Different Set of Resolutions

As 2010 comes to a close, and 2011 dawns, I find myself as I do every year contemplating resolutions that I’d like to make for this new year.  But this year, my resolutions are...

Normally, I’d probably post something like this on my private blog but my pain therapist has been encouraging me to share more of my journey with people – regardless of what that might look...

Normally, I’d probably post something like this on my private blog but my pain therapist has been encouraging me to share more of my journey with people – regardless of what that might look...

More surgery details

I said I’d expound a little on what they said in my last thoracic consultation that was a little disconcerting so, here it is… I knew about the “Thoracotomy” or at least thought I...

More surgery details

I’m not a huge one for using notes on FB, I prefer other sites for that type of thing but I said I’d expound a little on what they said in my last thoracic...