Monthly Archive: July 2011

To Whom It May Concern, I have what I believe will be a story of interest to you and your public. A few weeks ago, international news media carried a story concerning the the...

Paolo Macchiarini recommended that we get our story out to the media so that we can find a way to pay for the surgery.  Here’s the video from our first TV news story:

I’m on the official countdown now until I see Dan and Paolo. In a little less than 30 hours Steven and I will be sitting talking with them, finding out the particulars of the...

Dr. M. and his trip to VT. I’ll see him Monday morning before his presentation at Noon. 🙂 Literally counting down now! Regenerative Medicine Expert to Discuss Airway Surgery Advances SHARE THIS ARTICLE 07-21-2011...

‎”There is a crack in everything. That’s how the light gets in.” -L. Cohen, “Anthem.”

‎”There is a crack in everything. That’s how the light gets in.” -L. Cohen, “Anthem.”

Join us in blowing a couple friend’s minds! See “A Really Big Favor To Ask” post below and join in the fun. These doctors are out of the office right now. When they get...

Important Message: by Steven Phillips on Wednesday, July 20, 2011 at 10:50pm Thank you so very much for those of you who have already said you will write the two doctors I told you...

I have a really big favor to ask of you and it’s something I think you’ll enjoy being a part of.For the past three years a couple of people have worked tirelessly on Rachel’s...

I want to scream right now. I really do. But I can’t because my airways collapse. I can barely breathe because my genetic disorder airway collapse is causing me to slowly die, unless I...